Thankful

Grayson is working on a reflection post on two years since his ALS diagnosis. In the meantime I wanted to share a few things for which we are thankful. Grayson has been accepted into the ibudilast (MN-166) Expanded Access Program (EAP) through the Duke ALS Clinic. Our hope is that this drug will help stabilize his ALS symptoms, and if it’s helping him, he can continue on it in a compassionate extension program. His extraordinary care team will monitor his progress for the next six months and see what we see. We’re also happy to share that we’ve launched an ALS life fund for Grayson — details on the blog and also here. So incredibly thankful for those who helped launch strong with early support — srsly it means the world. We’d be appreciative if you shared it in your own networks.

Stay tuned for a personal note from Grayson — and thank you for being here with us.